Meeting Program

US Conference on Rare Diseases and Orphan Products: The New Era in Health Care

The US Conference on Rare Diseases and Orphan Products includes keynote, plenary and smaller group sessions. High-level plenary sessions will open a collaborative dialogue among leading researchers, company officials, investors, patient organizations and government leaders. Smaller group sessions are organized around four central themes: Research & Regulation; Access and Reimbursement; The Role of the patient in the research and regulatory process; and The Implementation of the Affordable Care Act. Topics to be covered include the implementation of both ACA and FDASIA; and how increased collaboration among the patient community, government and industry is driving advances in the rare disease community.

The conference will also feature a poster session selected from submitted poster abstracts by patient organizations, academics, health care professionals, governmental agencies, industry and all other interested parties who have conducted research studies or public health projects on rare diseases that will highlight the latest research.  

US Conference on Rare Diseases and Orphan Products

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