Patient Advocate Fellowship Program

The DIA Patient Advocate Fellowship Program is designed to:

  • Develop, strengthen, and support patient collaborations with policy makers, health professionals, industry representatives, and academia
  • Increase the knowledge and understanding of patient groups about key issues central to patient-centered healthcare, biomedical research, and drug development
  • Develop the capacity of patient groups to advocate for change 
  • Improve alliances between patient groups and other healthcare stakeholders
  • Stimulate cooperation, promote dialogue, and share best practices


Up to 15 selected candidates will receive a FULL scholarship, which includes:

  • One (1) complimentary registration to attend DIA 2012 (non- transferrable)
  • One (1) roundtrip coach air/train travel (including luggage fees)
  • Five (5) nights at a DIA designated hotel
  • Five (5) days per diem at $50/day maximum – reimbursement is for food and ground transport only
  • One (1) year free DIA e-Membership


Up to 5 selected candidates will receive a PARTIAL scholarship, which includes:

  • One (1) complimentary registration to attend DIA 2012 (non-transferrable)
  • One (1) year free DIA e-Membership


Candidates must:

  1. Represent 501  (3) organizations in the United States or registered charities in Canada that serve constituents with:
    Major chronic diseases
    Rare/ Orphan diseases
    Diseases with limited or no treatment options
  2. Serve in a leadership role at a patient advocacy organization with executive, programmatic, policy or advocacy experience
  3. Engage in, or be familiar with, activities related to biomedical research and/or drug development
  4. Understand policy issues and the legislative process
  5. Demonstrate proven track record around education and awareness activities
Prior year applicants who were not accepted may reapply.


  • Acromegaly Community, Inc.
  • Autosomal Recessive Polycystic Kidney Foundation/Congenital Hepatic Fibrosis Alliance
  • Averys Angels
  • Canadian Organization for Rare Disorders (CORD)
  • Huntington's Disease Society of America
  • International Cancer Advocacy Network
  • Lupus Foundation of America
  • Mass General Cancer Center
  • MRSA Survivors Network
  • National Alliance for Medication Assisted Recovery
  • National Dysautonomia Research Foundation
  • Neuva Vida (Latin Women with Cancer)
  • Ovarian Cancer National Alliance
  • Sturge-Weber Foundation
  • Vestibular Disorders Association

The application deadline for 2012 has passed.  Please check back for information about DIA 2013 in Boston.

For more information about this program and other opportunities for patient organizations contact

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